Showing posts with label pediatric cancer. Show all posts
Showing posts with label pediatric cancer. Show all posts

sounds

It's strange how you get used to the night sounds of a hospital room. The helicopter coming and going, the subtle clicks of his iv pumps gently gliding medication in to his body, the clock ticking, doors opening and closing, and the frequent middle of the night calls of "mom, I really need to pee".
I left the hospital for about an hour this evening to run a couple of errands. I could still hear his iv pump beeping in my head while I was gone.
I felt rested today. I probably slept better last night than I have all week. Probably from being worn out. I never sleep well the first night at the hospital.
Elijah is doing really well. He got sick this evening and we had to give him phenergan and ativan. He is sleeping like a rock now. I doubt he will even move.
My dear friend Susan put together the COOLEST scrap book for him of all the people she organized to run in his honor. He really thought it was cool. I have been sharing it with all of our visitors.. Running friends, we are so honored by YOU.. Susan - I love you. You are the best. It's a great feeling to have your child honored in such a tremendous way by someone you admire so much. I wish we were going to be there to see the St. Jude Marathon, but even if we are out of the hospital, Elijah most likely wont be well enough to travel that far. I am sure we will see lots of awesome pictures.
I got to hold the sweetest baby girl today. She is 19 months old and has the same diagnosis that Elijah does. Her dad needed to go to his vehicle to get his things. I love these cancer kids. I guess that sounds strange, but it's true. They have the most amazing fighting spirits. People really don't understand what all they go through until you walk this road with them. Elijah got to meet a really special guy yesterday. He is 15 and lost his leg to osteosarcoma. Yesterday he got his new prosthetic.. He came in to meet Elijah and show him his new leg.. now.. in true Elijah form he stared - but not because Tray was different and was missing his real leg, Elijah was staring because the new leg looked like a robot and was "really cool!!" I love these kids.

About this blog

I am a 43 year old Mom of 2 awesome kids. I have one child with a serious illness. Caring for him is mostly what I do - with a few other things mixed in here and there. I have been married to the same wonderful man for nearly 15 years now. I am forever on the quest to change my life for the better. I want to be more organized, much healthier, and much thinner. So far, I'm not getting there. This blog is for my ramblings and frustrations while on my neverending quest for improvement.