What a Trip!

We just got back from our trip to Chicago for the Neuroblastoma Conference that is put on by the Childrens Neuroblastoma Cancer Foundation. I am so thankful that the opportunity for us to go to this conference was there. I can't even begin to adequately express the wealth of information that we received. Britt and I really feel like we have a better grasp of the other treatment options that are available for Elijah and which direction we need to travel in for our next leg in this cancer journey. We had the opportunity to listen to researchers and Neuroblastoma specialists from all over the country. We also had the chance to speak to some of the doctors with regard to Elijah's care. All have agreed that Elijah has received excellent care here at our hospital, but there are some options available that we just can't get done here. There were nearly 100 families there from all over the world. It was amazing, to say the least.
We didn't have much spare time and were in the suburbs of Chicago, so we didn't get to venture out until our last night there. We rode the train in to downtown Chicago. We hailed a cab at Union Station and went to the top of the Sears Tower. wow. What a view of such a beautiful city. Chicago was so clean and lovely. I wanted so badly to go in to the opera house, but we were running really behind. We had just enough time to eat Chicago pizza at Lou Malnati's and then catch our train back to our car. We had so much fun sharing this with Elijah. I love times like these. Depending on what the scans show in a few weeks, we have a much clearer path ahead. It's a good feeling to know your way - or at least have a better idea..

2 comments:

Susan July 21, 2008 at 5:31 AM  

WOW! Sounds amazing! I hopr you took some good photos. Oh what am I saying?!? You have BT on your team!!!

CewTwo August 4, 2008 at 5:13 PM  

I love hearing about Chicago. I am going in Chicago to meet Susan and to run the Chicago Marathon.

Thanks for sharing!

About this blog

I am a 43 year old Mom of 2 awesome kids. I have one child with a serious illness. Caring for him is mostly what I do - with a few other things mixed in here and there. I have been married to the same wonderful man for nearly 15 years now. I am forever on the quest to change my life for the better. I want to be more organized, much healthier, and much thinner. So far, I'm not getting there. This blog is for my ramblings and frustrations while on my neverending quest for improvement.